Citizenship and Dementia: International Research Network

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"Citizenship and Dementia: International Research Network" is an international network aimed at stimulating and building international research on living with dementia from a citizenship perspective.   

The aims are

• To promote and engage in international research which seeks to explore meanings and assumptions relating to citizenship when living with dementia and consider their implications for social life and social policy.
• To undertake international comparisons on the meanings, practices and socio-legal and political contexts of citizenship within and across nations and promote academic, public and policy debate about promoting meaningful citizenship.
• To engage in collaborative high-quality research; thereby informing and contributing to debates on citizenship and inclusion when living with dementia.

 

Membership

• The network seeks to develop partnerships between academics internationally, people with dementia, families and communities, health and social care and third sector organisations and policy makers (national and international).
• The core membership is restricted to academics and people with dementia but partnership status will be available to all others, including family carers.

 

Structure and governance

• The network has been established by the research group “Policy, citizenship and dementia” at CEDER – Center for Dementia Research, at Linköping University, in Sweden. The first network meeting was held at CEDER, in October 2014 during the international conference “Life With Dementia: Relations”. The initiation of the network was funded by Riksbankens Jubileumsfond – The Swedish Foundation for Humanities and Social Sciences. At this inaugural meeting researchers from Australia, Canada, Finland, Hong Kong, New Zealand, Norway, UK and Sweden interacted, discussed and exchanged ideas around the topic as well as sketched possible future collaborations. The network welcomes researchers from across the globe.
• The members will work collaboratively to promote and develop the network at national and international levels. It is up to the network members to identify funders for future projects.
• People with dementia and related third sector organisations will be invited to join the network.

 

Guiding principles

• The network seeks to promote respect and recognition for the voice, status, capabilities and rights of people living with dementia.
• The network will work in partnership with people living with dementia to undertake research which seeks to enhance understanding of their citizenship status and practices, identify barriers (social, political and economic), challenge marginalising practices and policies and promote their equality.
• The network is open to a wide range of disciplinary and interdisciplinary approaches, methods and bodies of knowledge (including experiential knowledge) and multiple perspectives, also theoretical, in order to enrich understanding, inform public discourse and promote effective policy-making.
• The research undertaken by the network will aim to identify, explore and represent the experiences, social and political contexts and perspectives of diverse groups living with dementia (whether related to gender, class, ethnicity, religion, nationality etc).
• The network will seek to bring critical perspectives to academic and policy debate in this area, (especially critical disability, gender theory, political theory etc) and use these to inform and challenge discourse and policy making.

Contact
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Starting in Norrköping

The first network meeting was held in Norrköping in October 2014 and was funded by Riksbankens Jubileumsfond (RJ). At the successful meeting, researchers from Australia, Finland, Hong Kong, Canada, Norway, New Zealand, Great Britain and Sweden attended and discussed various ideas and collaborative projects.

Today, four network fairs have been held, the latest in Berlin, October 2017, in conjunction with the Alzheimer Europe Conference. The network currently consists of about 90 researchers spread all over the world. The next network meeting is scheduled to take place in 2018. More information about this will be published in 2018.

Workshops
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Working Group
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Deborah O'Connor

PhD, Professor

Dir. Centre for Research on Personhood in Dementia

  • University of British Columbia, Canada

Ruth Bartlett

PhD, Associate Professor

Health Sciences, University of Southampton

  • University of Southampton

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