Photo of Johanna Simmons

Johanna Simmons

Associate Professor, Docent

My main research interest concerns different aspects of elder abuse, both within family relations and within health care and social care.

Abuse of older people – common and associated with ill-health

Both Swedish and international studies indicate that approximately one in six people over the age of 65 has been exposed to some form of abuse during the past year. Older people who are dependent on others for activities in daily living, due to cognitive or somatic illness, are at particularly high risk of exposure.

Older adults may be abused by a partner, adult children or other close relatives, but also by health and social care staff. This may involve physical, emotional, sexual or financial abuse, as well as neglect. Experiences of abuse are strongly associated with poor health. In addition, dependence on others to manage activities of daily living and living with dementia are strong risk factors for abuse. Despite this, patients’ experiences of abuse are often unknown to healthcare providers, and many healthcare providers report not knowing what to do if a patient disclose exposure to abuse.

I use both qualitative and quantitative research methods, and the shared long-term goal of all my research is to identify strategies to improve societal support and assistance for older people exposed to abuse, and to prevent abuse from occurring in the first place. In particular, healthcare services and services for older adults need to strengthen their response to abuse of older people.

I am the principal investigator of the projects REAGERA (Responding to Elder Abuse in GERiAtric care) and APPEAL (A Path to Prevention of Elder Abuse in Long-term care). REAGERA investigates abuse of older people in general, with a particular focus on people living with dementia and their family members. Questionnaires that can be used to identify abuse of older adults have been validated, and the effects of training healthcare professionals about abuse have been investigated. In APPEAL, abuse of older people who receive home care services or live in residential long-term care facilities is explored from the perspective of both older adults themselves, relatives and staff. In addition, co-creation research methods are used to develop ways of preventing abuse of older people in residential care settings.

Publications

2026

Amina Guenna Holmgren, Annika Malmström, Eskil Degsell, Johanna Simmons, Lisa Kastbom (2026) "It was complete chaos day and night and no one was able to help": A qualitative study on the support needs of family members exposed to violence by patients with brain tumors Neuro-Oncology Advances, Vol. 8, Article vdag077 (Article in journal) https://dx.doi.org/10.1093/noajnl/vdag077
Cristina Joy Torgé, Johanna Simmons (2026) Sociala problem, omsorgsbörda och våldsutsatthet Äldrepsykiatri. Kliniska riktlinjer för utredning och behandling., p. 233-245 (Chapter in book)
Johanna Simmons, Cristina Joy Torgé (2026) Sociala problem omsorgsbörda och våldsutsatthet Äldrepsykiatri. Kliniska riktlinjer för utredning och behandling, p. 233-245 (Chapter in book)
Lisa Kastbom, Johan Lyth, Johanna Simmons, Lisa Martinsson, Maria Eriksdotter, Staffan Lundström, Katarina Nägga, Anna Segernäs Kvitting (2026) Quality of end-of-life care among individuals with and without dementia: a Swedish registry-based study BMC Palliative Care, Vol. 25, Article 89 (Article in journal) https://dx.doi.org/10.1186/s12904-026-02037-9
Amina Guenna Holmgren, Annika Malmström, Eskil Degsell, Johanna Simmons, Lisa Kastbom (2026) "My safe haven turned into a terror zone": A qualitative study of family members' experiences of violence by brain tumor patients PLOS ONE, Vol. 21, Article e0340959 (Article in journal) https://dx.doi.org/10.1371/journal.pone.0340959

Research

Organisation