This will require the application of various methods, including observation, interviews with alternative communication support, and adapted questionnaires. The research adopts the individual’s own perspective as well as the perspectives of family members and professional practitioners on the individuals’ internet use and participation.
For the purposes of this project, internet use is defined as using different means such as computers, tablets and smartphones to connect to the web in order to carry out everyday activities, eg search for information, shop, be entertained, socialise, and for democratic/political purposes (Findahl, 2014). Participation is defined as involvement in a life situation (WHO, 2001).
Accessibility, participation and health
Sweden’s Public Health Agency specifies “participation and influence” as among the most important preconditions for perceived health. Today, participating and having influence are based very much on using the internet, both at work/school and at home. Internet use is also an important element of democracy, and one of the guidance goals set by the Swedish government for increasing accessibility is a sustainable information society for all. However, everyday life for some individuals with disabilities has reportedly become more difficult as a result of IT development, e g because web pages have not been made accessible (Swedish Agency for Participation, 2014). Access to the internet for individuals with intellectual disabilities has not been made possible (Kenndey, 2011), and internet use can thus be seen as yet another aspect of everyday activities that intellectually disabled people are excluded from (Chadwick, Wesson and Fullwood, 2013).
The overall goals of the project are to increase our knowledge of how the internet is used by young intellectually disabled people, and to explore opportunities and obstacles in internet activities at the individual level, in order to be a part of society and be able to benefit from the resources that society offers. From the perspective of occupational therapy, there is a connection between health and involvement in activities. Using data generated by the young people themselves as well as by people in their immediate surroundings, results regarding activity can be obtained that are applicable in practice, and adaptations of internet activities for young people and young adults with intellectual disabilities can be implemented in order to enable participation and influence.
Data collection is ongoing. The research project is divided into two parts, and will be presented in four component studies. A compilation thesis is expected to be completed in 2020. Manuscripts for articles will be discussed at a doctoral seminar at the Division of Occupational Therapy.