Stroke Survivor Patients with Cardiac Disease
Stroke and cardiac disease commonly coexist due to an overlap of shared risk factors such as hypertension, diabetes mellitus, obesity, and smoking. Health care professional caring for cardiac patients may face stroke survivors or/and those at high risk for stroke. The aim of the literature overview is to contribute to the optimization of management of cardiac disease and stroke we aim to describe specific needs of cardiac patients with a history of stroke and identify current gaps in knowledge and care delivery’.
Symptom Scale Project
28 different PROM instruments have been identified and more than 15 have been linked to the ICF. The group analyzed the differences and similarities between instruments in terms om symptom burden. The individual items are also arranged in order of disease-specificness or generality.
These analyses has been published, you can read the article here.
Quality of Life Project
Cardiac patients often report suffering from bodily pain that not always seems to be related to their cardiac disease. To get more insight in the frequency of pain and related factors we aim to describe and to compare pain scores (as measured with SF36) in cardiac patients. We combined 6 databases with data of 3409 Swedish patients based on primary cardiac diagnoses including heart failure, arrhythmia, congenital heart disease and coronary artery disease. QoL and pain were assessed by the 36-Item Short-Form Survey (SF-36). Analyses were performed to examine the relationship between other components of QoL and demographic characteristics were checked for differences between cardiac diseases.
The data was be presented at the EuroHeartCare 2015 conference in Dubrovnik and then this project will be closed down. We have learned a lot with regard to combining databases, differences in demographic and clinical variables, working with minimal data etc.Read more here.
Uniform demographic data form project
Within the CESAR group, one project was to develop a questionnaire to collect standardized demographic data. The idea was that all members could use the same items when collecting data to make it easier to merge and/or compare datasets, but also to reduce time consumption and effort by offering a completed questionnaire that can be added to the other measurements. Off-course, questions can be left out, added or modified to better suit the aim of the study.
If you are interested in using the form, please inform Ghassan Mourad.