DiaCare
Person-Centred Diabetes Care for Older People in Community Care

Några personer som går längs en korridor. Photographer: Maskot

DiaCare is a national research program focused on diabetes care for elderly receiving insulin treatment in municipal community care. The goal is safer care and a reduced risk of complications.

Insulin-treated diabetes in community care

More people with diabetes are living longer, and insulin treatment is becoming increasingly common among older adults in nursing homes and supported home care. This also includes people with type 1 diabetes, who today are more likely to reach older age than in the past. In Linköping Municipality, approximately 10% of residents in nursing homes have insulin-treated diabetes. At the same time, community care often works with limited resources, and much of the daily insulin treatment is provided by nurse assistants with limited medical training. This means that staff with the least medical training may be the first to notice changes in a person’s condition and initiate medical assessment, which can create major patient safety risks. If changes in blood glucose are not detected or managed in time, the consequences can be serious and, in the worst cases, fatal. More knowledge is therefore needed about how diabetes care works in community care today, and what support is required to make care safer.

The DiaCare study

DiaCare aims to develop and evaluate a more person-centred diabetes care for older people receiving insulin treatment in community care. In the study, we want to understand how diabetes care works today, what challenges exist in daily practice, and what support is needed to improve safety and security for both patients and staff.

 

En kvinna som håller ett barn i handen på ett sjukhus. Halfpoint Images
Together with Linköping Municipality and national and international collaborators, we aim to develop a new care model in close collaboration with patients, relatives, and healthcare staff. This model will then be tested in a large, pragmatic cluster-randomised study in several Swedish regions. The goal is to improve blood glucose control, reduce acute complications, strengthen quality of life, and create a safer care pathway between community care, primary care, and hospital care. 

 

DiaCare is planned to be carried out in five steps:

  1. Mapping current care
    First, we want to examine how insulin treatment in community care for older people works today. The aim is to gain an overall understanding of current practices, challenges, and needs, which can then form the basis for developing a new and safer care model. This mapping is carried out through a systematic review of previous research, a national survey sent to all municipalities in Sweden, and interviews with patients, relatives, and healthcare staff.

  2. Co-creation of intervention
    Based on the mapping, we will develop a new care model together with patients, relatives, and healthcare staff. The aim is to ensure that the model responds to current needs and contributes to safer and more secure insulin treatment.

  3. Pilot study in Linköping
    The new care model will first be tested on a smaller scale in Linköping Municipality. The pilot study will help us understand how the model works in practice and whether any adjustments are needed before it is tested on a larger scale.

  4. National cluster-randomised intervention study
    The care model will then be tested in a larger study across several Swedish regions. The study aims to examine whether the intervention can improve blood glucose control, reduce acute complications, strengthen quality of life, and make the healthcare system safer.

  5. Implementation
    a. If the care model shows positive effects, we will study how it can be introduced and used long-term in community care. The focus is on creating a model that is sustainable, practical to use, and adapted to community care.

 

Ett diagram över olika typer av information.
 

For researchers:, PROSPERO systematic review protocol:
PROSPERO systematic review protocol

Collaborators and funding

DiaCare brings together researchers, municipalities, regions, patients, and patient representatives in a broad, interdisciplinary collaboration. The research programme is led by Linköping University and carried out in collaboration with the University of Cambridge in the United Kingdom, the University of Gothenburg, Karolinska Institutet, Uppsala University and Örebro University.

Linköping Municipality is a central partner and is involved in several parts of the project, including mapping current care, co-creation, the pilot study, and implementation. The patient perspective is also an important part of DiaCare. Funktionsrätt Östergötland is involved through patient representative Torbjörn Trygg, who contributes to the steering group, co-creation activities, and review of project materials. DiaCare is mainly funded by the Swedish Research Council and Forte.

Contact:
diacare@liu.se


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