Photo of Tiny Jaarsma

Tiny Jaarsma

Professor

My professional activities evolve round a central theme Living a good life with heart disease – how can we improve self-care. In an international arena I develop and test interventions to improve self-care of patients with chronic cardiac disease.

Presentation

My working life, I have spent mostly in research and nursing. My work has been dedicated to advance the quality of nursing care for elderly persons with chronic heart failure and/or other chronic diseases.

One of the main scientific achievements is the integration of current scientific knowledge in a middle range theory: ‘the middle range theory of self-care in chronic illness’ developed with professors Anna Strömberg and Barbara Riegel.

I am also involved in several research studies that aim to increase the level of evidence for the effectiveness of novel interventions for (mostly elderly) patients with chronic heart failure, for example the HF-Wii study, the tele-Yoga study and the Heart-eXg study. Another important research line I lead is aimed to integrate palliative care into heart failure care.

I am also passionate about empowering patients and their caregivers. For the AHA and the Sedish Heart and Lung Foundation I have provided input in a patient brochure on sexual function and cardiac disease. I was a cofounder of the patientwebsite heartfailurematters.com and coordinator of the ESC initiative to make Patient versions of ESC Guidelines with the Patient version of the ESC Guidelines on Heart Failure proudly launched in May 2022 and several others publiced after that.

Finally, I enjoy being involved in writing scientific statements, guidelines and position paper to guide practice and education based on research.


Publications

Selected publications

Cover of publication ''
Tiny Jaarsma, Barbara Riegel, Anna Strömberg (2025)

European Journal of Cardiovascular Nursing Continue to DOI

Cover of publication ''
Tiny Jaarsma, Leonie Klompstra, Tuvia Ben Gal, Binyamin Ben Avraham, Josiane Boyne, Maria Bäck, Oronzo Chiala, Kenneth Dickstein, Lorraine Evangelista, Andreas Hagenow, Arno W. Hoes, Eva Hagglund, Massimo F. Piepoli, Ercole Vellone, Nicolaas P. A. Zuithoff, Jan Martensson, Anna Strömberg (2021)

European Journal of Heart Failure , Vol.23 , s.114-124 Continue to DOI

Cover of publication ''
Loreena Hill, Resham Baruah, James M. Beattie, Vasiliki Bistola, Teresa Castiello, Jelena Celutkiene, Giuseppe Di Stolfo, Tal Prager Geller, Ekaterini Lambrinou, Richard Mindham, Sonja McIlfatrick, Anna Strömberg, Tiny Jaarsma (2023)

European Journal of Heart Failure , Vol.25 , s.1481-1492 Continue to DOI

2025

Wendys Dusenbury, Susan Barnason, Stephanie Vaughn, Anne Leclaire, Tiny Jaarsma, Michelle Camicia (2025) Sexual Health After a Stroke: A Topical Review and Recommendations for Health Care Professionals Stroke, Vol. 56, p. 1312-1322 (Article, review/survey) Continue to DOI
Pallav Deka, Dola Pathak, Martje van del Wal, Anna Strömberg, Tiny Jaarsma, Leonie Klompstra (2025) Shortness of breath, fatigue, and well-being in patients with heart failure: a daily trend analysis over 12 weeks European Journal of Cardiovascular Nursing (Article in journal) Continue to DOI
Maria Andreassen, Nuria Santaularia, Aseel Berglund, Erik Berglund, Helena Orädd, Anna Strömberg, Tiny Jaarsma, Leonie Klompstra (2025) Feasibility of a Mobile Exergame for Patients with Heart Failure Games for Health Journal (Article in journal) Continue to DOI
Job J. Herrmann, Hans-Peter Brunner-La Rocca, Lisette E. H. J. M. Baltussen, Fabienne Beckers-Wesche, Sebastiaan C. A. M. Bekkers, Louise Bellersen, J. W. Martijn van Eck, H. Carlijne Hassing, Tiny Jaarsma, Gerard C. M. Linssen, Ron Pisters, Sandra Sanders-van Wijk, Marjolein H. I. Verdijk, M. Louis Handoko, Peter van der Meer, Frederik H. Verbrugge, James L. Januzzi Jr, Antoni Bayes-Genis, Robby Nieuwlaat, Laura Rodwell, D. H. Frank Gommans, Roland R. J. van Kimmenade (2025) Liberal fluid intake versus fluid restriction in chronic heart failure: a randomized clinical trial Nature Medicine (Article in journal) Continue to DOI
Anne Geert van Driel, Ekram Maghroudi, Annemarie van der Klis, John de Heide, Susanne van Hooft, Anneloes van Staa, Tiny Jaarsma (2025) Considering health literacy in communication about medications between nurses and patients with heart failure: A cross sectional observational study Patient Education and Counseling, Vol. 135, Article 108709 (Article in journal) Continue to DOI

Research

Is your research in the same field?

If you are interested in collaboration in one of our research projects or work with our measurement scales, please contact me: tiny.jaarsma@liu.se



Other projects

  • LiLAC-HF project, "Effect of Non-Invasive Lung Fluid Monitoring Using ReDS Technology for Heart Failure Management in Primary Care Settings: a Randomized Controlled Trial. Project lead by dr. N P Kato
  • Optimizing sexual health for patients with cardiac disease. Project collaborator: dr. L. Klompstra. Link to podcast
  • Developing and validating a self-care scale for persons with a Left Ventricular Assist Device. Project collaborator Dr. N.P Kato
  • Further developing the Middle Range Theory of Self-care with prof professors A. Strömberg and B.Riegel.
  • EU ESCAPE project : Project Overview | ESCAPE - H2020: sing digital health technologies, ESCAPE will create integrated and personalised treatment plans for elderly patients with multiple health conditions to investigate improvements to their health-related quality of life.

Teaching

Undergraduate

  • Semester 3: Weblecture on Measurement instruments

Advanced level

  • Course in self-care in chronic illness in the interprofessional master program
  • Lectures in specialist education for nurses on self-care

Doctoral level

  • Co-course leader: doctoral course Self-care in chronic disease
  • Co-course doctoral course Scientific Methodology: Methods for Systematic and Critical study of research reports
  • Co-course leader of doctoral course: the art and science of scientific writing
  • Lecture doctoral seminars: How to do a good review, how to response to reviewers, international collaboration, reflection on research grants

Commissions

Administration and committees

Awards

  • The AHA Mathy Mezey Excellence in Aging Award 2024
  • The ACNAP Distinguished services Award 2023
  • The honorary editor in chief award 2023
  • ESC presidents award 2022
  • ESC Florence Nightingale lecture in nurse led research 2020
  • Honorary named Lecture: G.M Evers Lecture (University of Leuven) 2018
  • Fridlunds Scientific Prize 2017 VIC, 2017
  • Distinguished Scientist Award: American Heart Association (AHA) 2016
  • Honorary named Lecture: Mebius Kramer Lezing (University of Utrecht) 2011
  • Fellow of the European Academy of Nurse Scientists (EANS) 2014
  • Fellow of the American Academy of Nursing (FAAN) 2011
  • Nurse Fellow of the European Society of Cardiology (NFESC) 2000
  • Fellow of the American Heart Association (FAHA) 2001
  • Honorary member of the Dutch Cardiovascular Nurses Association 2003
  • Anna Reynvaan best article of the Year award 2000
  • Research training fellow of Heart Failure Association: N. Kolbe
  • Member of the Nursing Council AHA (since 1999), Dutch Cardiac Nursing society (since 1998, honorary member since 2005), Dutch Nursing Science group (since 2001) CCNAP ESC (since 1996), HFA ESC (since 2000)

Collaborators within LiU

External partners

National

International

  • For the HF Wii study we have built a strong consortium with collaborators from different countries. Data on the Wii trial will be collected by the research team of Dr. Tuvia Ben Gal, Director of the HF Unit in Rabin Medical Centre (Israel) and Dr. Ercole Vellone, member of the Department of Public Health, Faculty of Medicine, University of Tor Vergata (Italy) and Dr JJ Boyne, University Hospital of Maastricht (Netherlands).
  • Further active collaboration exists with Professor Dr. Simon Stewart, Head of Preventative Health & Group Leader of Population Health. From the University of Pennsylvania (USA) we work with the multidisciplinary team of Professor Barbara Riegel.
  • Together with colleagues from Ireland I am part of the Steering committee of the CHARMS study: Improving Sexual Assessment and Counselling in Cardiac Rehabilitation.
  • I also partner with Professor Susanne S. Pedersen in the ACQUIRE-HF study, a study on patient centered care in heart failure patients.
  • For the HF ExG study we have built a strong consortium with collaborators from different countries such as Spain, the Netherlands, Slovakia, Israel.
  • I would parttime as professor in Nursing Science at the department of cardiology in the University Medical Center in Utrecht. The Netherlands

Organisation

News