A core project in this line is called TALK-HF – Developing and evaluating a Training program Aimed at reducing the Lack of Knowledge and communication concerning palliative care issues in Heart Failure patients.
The overall purpose of the study is to improve the quality of care for heart failure (HF) patients, focusing on communication issues between health care provider and patients in order to improve their quality of life and also prevent unnecessary suffering and resource utilization.
Data are collected in 136 HF nurses and of 611 patients and published.
Currently, data are collected in focus groups and interviews from patients and a co-design approach is used to develop an intervention. Future studies will include testing an intervention to improve communication. This study is replicated in the Netherlands and data was also collected in the US.
Further activities related to this research line include collaboration with researchers in the University of Umeå regarding The Heart failure and Palliative care Programme (HOPE).
Funding
- Hjärt-Lung Fonden
- Konung Gustaf V:s och Drottning Victorias Frimurarstiftelse
- Fondkistan
